Dear Friend of the Angel Baby Foundation,

The Angel Baby Foundation has had another very successful year thanks to you and your support. Spinal Muscular Atrophy continues to be the number one genetic killer of children under two years old. Caring for an affected child places an enormous emotional and financial burden on these families. As you know, the Angel Baby Foundation is committed to providing emotional and financial support to ease the burden of Spinal Muscular Atrophy on affected families.

Throughout, the funds raised from our generous friends, family, corporations and from our second annual silent auction surpassed our expectations - THANK YOU. These funds have all been put towards our mission in which we truly believe. We continue to be contacted by families affected by SMA on a weekly basis for our help. All of these families have had children born with SMA and came to us for our help because we provide the services and support that parents need to care for an affected child. We were able to provide William with a $3,300 automatic cough assist machine which allowed him to go home and live with his family instead of in an intensive care unit. William's family is grateful for the precious time at home this gift has given them. Remember last year when I wrote how we were able to throw Mason a milestone 2 year birthday party? William continues to amaze as we helped his mom throw him a 3 year birthday party this year!! They were able to celebrate with family and friends. Parents just don't plan for the cost of a funeral and proper burial for their children and this year we helped two families with this cost. They each were able to personalize the grave marker suiting their needs, ordered and paid for by the Angel Baby Foundation.

This year Families of SMA published a very exciting and thorough brochure on the genetics of SMA from the $5,000 donation we made last year. This year we have donated $10,000 more to Families of SMA earmarked for 2 additional educational brochures. Partnering with the Claire Altman Heine Foundation has been a huge success. Last year John went to Washington D.C. and addressed members of Congress. As a direct result the first federally sponsored federal review of carrier screening policy will take place in February 2008 under the National Institutes of Health. We also continue to provide Ob/Gyn offices with the Claire Altman Heine Foundation's brochures. We feel this is a very important project as one in forty people is a carrier of the SMA gene and the carrier testing is available and is as simple as a blood test.

Jamie, John, and Samantha are planning another trip to Washington D.C. in February to address members of Congress and tell our personal story with Cameron and SMA, as well as ask for support for legislation for carrier and newborn testing and funds for research.

With the generous support of people like you, we will continue to help these families by providing emotional support, groceries, meal deliveries, cleaning services, toys for the children, and more. The Angel Baby Foundation will continue to be run solely by volunteers so all profits may go directly to families affected by SMA, education, and researching a cure.

For more information on how your donation is helping to make a difference, we invite you to visit our Web site at www.angelbabyfoundation.org. You can also find information on the site regarding our upcoming events for this year.

Thank you again, and we look forward to your continued support.

Sincerely,

John & Jamie Shish
Co-founders of The Angel Baby Foundation

 

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PO Box 905, Elmhurst IL 60126 Email: support@angelbabyfoundation.org